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{"id":5863,"date":"2020-11-09T10:38:53","date_gmt":"2020-11-09T09:38:53","guid":{"rendered":"http:\/\/assistans.tv\/blogg\/?p=5863"},"modified":"2020-11-09T10:38:53","modified_gmt":"2020-11-09T09:38:53","slug":"me-sjuke-holger-nekas-personlig-assistans","status":"publish","type":"post","link":"https:\/\/assistans.tv\/blogg\/2020\/11\/09\/me-sjuke-holger-nekas-personlig-assistans\/","title":{"rendered":"ME sjuke Holger nekas personlig assistans"},"content":{"rendered":"\n
\"\"<\/figure><\/div>\n\n\n\n

<\/p>\n\n\n\n

ME sjuke Holger har drabbats s\u00e5 h\u00e5rt av sjukdomen att han inte l\u00e4ngre kan tala. ME\/CFS \u00e4r en sjukdom som inneb\u00e4r extrem tr\u00f6tthet som inte g\u00e5r att vila bort. Den f\u00f6rv\u00e4rras ocks\u00e5 av fysisk eller mental anstr\u00e4ngning. Men vet inte vad som kan orsaka sjukdomen men tror att det kan ha att g\u00f6ra med en virus infektion. I Holgers fall s\u00e5 b\u00f6rjade det med att han fick k\u00f6rtelfeber p\u00e5 gymnasiet. F\u00f6r\u00e4ndringarna kom sedan stegvis s\u00e5 att det var sv\u00e5rt att urskilja dem.


Holger studerade vidare och sedan gifta han sig ber\u00e4ttar hans syskon. Han blev sedan gradvis s\u00e4mre och fick diagnosen utmattningssyndrom. Han blev mer och mer bunden till hemmet och fick d\u00e5 till slut i januari 2018 diagnosen ME\/CFS kronisk utmattningssyndrom. Syskonen kunde under 2018 inte umg\u00e5s s\u00e5 mycket med Holger, men n\u00e4r dem tillslut tr\u00e4ffade honom p\u00e5 julen s\u00e5 orkande han inte umg\u00e5s s\u00e5 mycket med familjen och han kunde bara viska.<\/p>\n\n\n\n

<\/p>\n\n\n\n

Under 2019 f\u00f6rs\u00e4mrades hans tillst\u00e5nd kraftigt, han fick hemtj\u00e4nst. Kunde inte borsta sina t\u00e4nder sj\u00e4lv. D\u00e5 f\u00f6rst\u00e5r man att det n\u00e5got som \u00e4r fel, eftersom det inte \u00e4r anstr\u00e4ngande handling. I mars 2019 slutade hand prata, gissar att han inte l\u00e4ngre orkade det. Han ligger med b\u00e5de solglas\u00f6gon och h\u00f6rselk\u00e5por i sin s\u00e4ng d\u00e5 han blivit b\u00e5de ljus och ljud k\u00e4nslig. Kommunikationen sker genom att dem skriver p\u00e5 en tavla till honom. Sen kan han nicka eller r\u00f6ra p\u00e5 sin tumme f\u00f6r att kommunicera.


Familjen har f\u00e5tt avslag p\u00e5 assistans b\u00e5de fr\u00e5n F\u00f6rs\u00e4kringskassan och Vaggeryds kommun. Nu k\u00e4nner man att orken b\u00f6rjar ta slut. Som ett ytterligare h\u00e5rt slag s\u00e5 meddelande kommunen att man inte kan bevilja assistans som t\u00e4cker hela kv\u00e4lls behovet. Holgers situation \u00e4r sv\u00e5r d\u00e5 han inte passar in i dem personkretsar som finns i LSS. Vilket g\u00f6r att han f\u00e5r sv\u00e5rt att f\u00e5 beslut. Eftersom det s\u00e4kerligen \u00e4r sv\u00e5rt att bevisa att Holgers tillst\u00e5nd \u00e4r varaktigt.<\/p>\n\n\n\n

Vill ni l\u00e4sa mer om Holgers situation s\u00e5 rekommenderar jag artikeln nedan:

https:\/\/www.varldenidag.se\/nyheter\/me-sjuke-holger-nekas-personlig-assistent-engagerar-manga\/reptfp!wHs6EMOjQCD9OsHyKTzRw\/<\/a>
<\/p>\n\n\n\n

Beh\u00f6ver ni hj\u00e4lp att ans\u00f6ka eller \u00f6verklaga ett beslut om assistans?
Kontakta oss p\u00e5 Assistansjuristerna.

Niklas
\/\/sekreterare<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

ME sjuke Holger har drabbats s\u00e5 h\u00e5rt av sjukdomen att han inte l\u00e4ngre kan tala. ME\/CFS \u00e4r en sjukdom som inneb\u00e4r extrem tr\u00f6tthet som inte g\u00e5r att vila bort. Den f\u00f6rv\u00e4rras ocks\u00e5 av fysisk eller mental anstr\u00e4ngning. Men vet inte vad som kan orsaka sjukdomen men tror att det kan ha att g\u00f6ra med en … <\/p>\n