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{"id":3706,"date":"2016-09-02T16:29:21","date_gmt":"2016-09-02T16:29:21","guid":{"rendered":"http:\/\/assistansbloggen.se\/?p=3706"},"modified":"2016-09-02T16:29:21","modified_gmt":"2016-09-02T16:29:21","slug":"gor-allt-du-kan","status":"publish","type":"post","link":"http:\/\/assistans.tv\/blogg\/2016\/09\/02\/gor-allt-du-kan\/","title":{"rendered":"G\u00f6r allt du kan!"},"content":{"rendered":"

Hej jag heter Loren!<\/p>\n

N\u00e4r jag var nyf\u00f6dd misst\u00e4nkte man att det var n\u00e5got annorlunda\u00a0med mig. P\u00e5 grund av en genetisk sjukdom har jag sv\u00e5rt att g\u00e5 och r\u00f6ra armarna, p\u00e5 grund av n\u00e5got man kallar tunna muskler. Jag har \u00e4ven en synskada som g\u00f6r att jag bara kan se 5 centimeter framf\u00f6r mig. Jag delar den h\u00e4r sjukdomen med min storasyster. Jag vill ber\u00e4tta min historia f\u00f6r att fler skall f\u00e5 upp \u00f6gonen f\u00f6r hur det \u00e4r att leva med ett funktionshinder.<\/p>\n

Jag \u00e4r 14 \u00e5r gammal och g\u00e5r p\u00e5 h\u00f6gstadiet i \u00e5ttan. Varje nytt skol\u00e5r f\u00e5r jag ber\u00e4tta om min sjukdom f\u00f6r alla i klassen, f\u00f6r det \u00e4r alltid n\u00e5gon ny som inte vet n\u00e5got om min situation och beh\u00f6ver veta. I en skola jag gick i f\u00f6rut var vi flera i klassen som hade funktionshinder, men nu \u00e4r det bara jag och det k\u00e4nns som att jag blir utpekad.
\nIbland upplever jag att skolan inte tar mina problem p\u00e5 allvar. Det kan vara strul med elevassistenter, som jag sj\u00e4lv inte valt, som inte tar sitt jobb seri\u00f6st. Ofta p\u00e5 gympalektionerna kan jag inte vara med p\u00e5 allt, d\u00e5 kan det h\u00e4nda att gympal\u00e4raren inte har planerat n\u00e5gon annan aktivitet och man f\u00e5r bara vara med och titta p\u00e5. Det \u00e4r inte riktigt r\u00e4tt och jag skulle g\u00e4rna vilja g\u00f6ra n\u00e5got annat.
\nDet \u00e4r inte bara i skolan mitt liv skiljer sig fr\u00e5n andras. P\u00e5 eftermiddagarna \u00e4r det m\u00e5nga som \u00e4r med v\u00e4nner eller sysslar med sina intressen. Jag g\u00e5r till l\u00e4karen.
\nJag \u00e4r hos olika l\u00e4kare n\u00e4stan varje dag. Vilket tar mycket tid men \u00e4r viktigt f\u00f6r att jag skall kunna ta hand om mig sj\u00e4lv. Den 12 september skall jag till en mottagning p\u00e5 Karolinska. Jag skall f\u00e5 en peg i magen som skall hj\u00e4lpa mig f\u00e5 n\u00e4ring, d\u00e5 det \u00e4r sv\u00e5rt f\u00f6r mig att \u00e4ta mycket, n\u00e5got som kommer av att jag sitter i rullstol s\u00e5 ofta, och inte st\u00e5r.
\nMen jag har m\u00e5l och dr\u00f6mmar. Jag tycker det \u00e4r roligt att plugga och g\u00e5 i skolan, vara med familj och v\u00e4nner. Jag tycker inte man skall ge upp, d\u00e5 f\u00f6rlorar man bara. Man ska g\u00f6ra allt man kan! Jag st\u00f6r mig p\u00e5 att det finns en id\u00e9 om hur mycket vi med funktionshinder kan eller inte kan g\u00f6ra. \u00c4nda sedan jag var liten har jag velat bli jurist. Jag vill jobba f\u00f6r dem som lever med or\u00e4ttvisor och k\u00e4nner att de inte blir bra behandlade.
\nIbland blir folk arga om jag till exempel m\u00e5ste g\u00e5 f\u00f6re i en k\u00f6 eller liknande p\u00e5 grund av mitt funktionshinder. Jag tycker inte samh\u00e4llet respekterar personer med\u00a0funktionshinder s\u00e5 mycket som de borde. Vad har vi gjort f\u00f6r fel som f\u00f6tts s\u00e5h\u00e4r? Om man inte kan respektera det borde man inte s\u00e4ga n\u00e5got alls.
\nFolk skall l\u00e4ra sig ta mera h\u00e4nsyn. Jag \u00f6nskar att det fanns kurser eller b\u00f6cker om hur man skall g\u00f6ra. S\u00e5 att man f\u00f6rst\u00e5r b\u00e4ttre. Jag vill skriva en bok som skall st\u00e5 p\u00e5 alla habiliteringar, bibliotek och skolor – s\u00e5 alla kan l\u00e4ra sig hur det \u00e4r!<\/p>\n

Vi h\u00f6rs igen<\/p>\n

\/Loren<\/p>\n

Du kan se en intervju med mig p\u00e5 www.assistans.tv<\/p>\n","protected":false},"excerpt":{"rendered":"

Hej jag heter Loren! N\u00e4r jag var nyf\u00f6dd misst\u00e4nkte man att det var n\u00e5got annorlunda\u00a0med mig. P\u00e5 grund av en genetisk sjukdom har jag sv\u00e5rt att g\u00e5 och r\u00f6ra armarna, p\u00e5 grund av n\u00e5got man kallar tunna muskler. Jag har \u00e4ven en synskada som g\u00f6r att jag bara kan se 5 centimeter framf\u00f6r mig. Jag … <\/p>\n