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{"id":3627,"date":"2016-08-22T15:39:24","date_gmt":"2016-08-22T15:39:24","guid":{"rendered":"http:\/\/assistansbloggen.se\/?p=3627"},"modified":"2016-08-22T15:39:24","modified_gmt":"2016-08-22T15:39:24","slug":"assistans-ar-en-mansklig-rattighet-eller","status":"publish","type":"post","link":"http:\/\/assistans.tv\/blogg\/2016\/08\/22\/assistans-ar-en-mansklig-rattighet-eller\/","title":{"rendered":"Assistans \u00e4r en m\u00e4nsklig r\u00e4ttighet, eller?"},"content":{"rendered":"

I helgen l\u00e4ste jag en hj\u00e4rtsk\u00e4rande artikel i Aftonbladet. \u201dSelma, 4, kan inte g\u00e5 eller \u00e4ta \u2013 nu tas st\u00f6det bort\u201d. \u00a0Idag f\u00e5r Selma \u00a066, 57 timmar assistans i veckan. Men efter ett nytt beslut av F\u00f6rs\u00e4kringskassan har hon inte l\u00e4ngre r\u00e4tt till hj\u00e4lp mer \u00e4n 5 timmar och 51 minuter i veckan. Hur \u00e4r det m\u00f6jligt undrar jag, varf\u00f6r har hon inte l\u00e4ngre r\u00e4tt till hj\u00e4lp? Hennes behov har inte minskat. Hennes f\u00f6r\u00e4ldrar \u00e4r desperata och flickans pappa menar att det \u00e4r katastrof, att det inte kommer finnas n\u00e5gon tid att g\u00f6ra saker ihop och att Selmas liv kommer bli tommare.<\/p>\n

Hur har det kunnat bli s\u00e5 h\u00e4r? Ska denna flicka och hennes f\u00f6r\u00e4ldrar som redan nu har m\u00e5nga\u00a0sv\u00e5righeter att klara vardagen f\u00e5 minimalt med hj\u00e4lp. Flickan f\u00f6ddes med en grav hj\u00e4rnmissbildning, lissencefali, och kan inte r\u00f6ra sig, prata eller \u00e4ta och beh\u00f6ver starka mediciner. Hon f\u00e5r \u00e4ven kraftiga epileptiska anfall. Hennes f\u00f6r\u00e4ldrar menar att hon beh\u00f6ver mycket tillsyn f\u00f6r att kunna leva, utvecklas och kunna gl\u00e4djas \u00e5t livet som andra barn. Deras st\u00f6rsta farh\u00e5ga \u00e4r att det inte ska finnas n\u00e5gon i n\u00e4rheten som vet hur man hanterar det h\u00e4r och att det kan sluta med det v\u00e4rsta.<\/p>\n

F\u00f6r att f\u00e5 r\u00e4tt till assistanshj\u00e4lp enligt LSS kr\u00e4vs det att F\u00f6rs\u00e4kringskassan gjort bed\u00f6mningen att personen beh\u00f6ver minst 20 timmar hj\u00e4lp i veckan f\u00f6r sina grundl\u00e4ggande behov. Tidigare r\u00e4knades medicinering, sondmatning och tr\u00e4ning dit \u2013 i dag r\u00e4knas det som medicinv\u00e5rd eller egenv\u00e5rd. Men Selma kan inte g\u00f6ra detta sj\u00e4lv.<\/p>\n

Det \u00e4r inte sv\u00e5rt att r\u00e4kna ut att f\u00f6r Selmas liv skulle en minskad assistans \u00a0betyda ett mycket tommare liv och slutk\u00f6rda f\u00f6r\u00e4ldrar. Ska det beh\u00f6va vara s\u00e5 h\u00e4r i dagens Sverige \u00e5r 2016. Det sk\u00e4r i mitt hj\u00e4rta n\u00e4r jag l\u00e4ser om Selma och hennes situation.<\/p>\n

Lise Henningsson\/Kommunikat\u00f6r<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

I helgen l\u00e4ste jag en hj\u00e4rtsk\u00e4rande artikel i Aftonbladet. \u201dSelma, 4, kan inte g\u00e5 eller \u00e4ta \u2013 nu tas st\u00f6det bort\u201d. \u00a0Idag f\u00e5r Selma \u00a066, 57 timmar assistans i veckan. Men efter ett nytt beslut av F\u00f6rs\u00e4kringskassan har hon inte l\u00e4ngre r\u00e4tt till hj\u00e4lp mer \u00e4n 5 timmar och 51 minuter i veckan. Hur \u00e4r … <\/p>\n