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{"id":2557,"date":"2016-02-10T16:14:42","date_gmt":"2016-02-10T16:14:42","guid":{"rendered":"http:\/\/assistansbloggen.se\/?p=2557"},"modified":"2016-02-10T16:14:42","modified_gmt":"2016-02-10T16:14:42","slug":"oppet-brev-till-barn-aldre-och-jamstalldhetsminister-asa-regner","status":"publish","type":"post","link":"http:\/\/assistans.tv\/blogg\/2016\/02\/10\/oppet-brev-till-barn-aldre-och-jamstalldhetsminister-asa-regner\/","title":{"rendered":"\u00d6ppet brev till barn-, \u00e4ldre- och j\u00e4mst\u00e4lldhetsminister \u00c5sa Regn\u00e9r"},"content":{"rendered":"

Idag skrev jag ett \u00f6ppet brev till \u00c5sa Regn\u00e9r i DN.\u00c5sikt:<\/a><\/p>\n

Hej barn-, \u00e4ldre- och j\u00e4mst\u00e4lldhetsminister \u00c5sa Regn\u00e9r,
\n\"06\"
\n<\/strong><\/p>\n

Jag heter Veronica Hedenmark. Precis som du \u00e4r jag en yrkesarbetande kvinna i karri\u00e4ren och sm\u00e5barnsf\u00f6r\u00e4lder.<\/p>\n

Jag har t\u00e4nkt p\u00e5 dig hela dagen i dag, eftersom jag \u00e4r oroad \u00f6ver vilka konsekvenser ditt senaste uppdrag till F\u00f6rs\u00e4kringskassan, att spara in p\u00e5 den personliga assistansen, ska f\u00e5 f\u00f6r mig och andra personer med funktionshinder.<\/p>\n

Jag ska ber\u00e4tta f\u00f6r dig om hur mitt liv ser ut.\u00a0 Jag \u00e4r f\u00f6dd med den sv\u00e5raste formen av bensk\u00f6rhet och jag kommer aldrig att kunna g\u00e5 ett enda steg eller lyfta en enda sak som v\u00e4ger mer \u00e4n en penna eller en mobil. Det \u00e4r ett mycket omfattande funktionshinder och jag beh\u00f6ver hj\u00e4lp med allt, utom med tv\u00e5 saker \u2013 och det \u00e4r att prata och att t\u00e4nka, det kan jag g\u00f6ra p\u00e5 egen hand.<\/p>\n

M\u00e4nniskosynen har under alla \u00e5r varit att jag \u00e4r en kostnadskr\u00e4vande medborgare och en st\u00e4ndig utgift som belastar v\u00e5rt samh\u00e4lle, och vem vill vara det? Inte jag i alla fall, men jag har aldrig haft n\u00e5got val. F\u00f6r mitt funktionshinder kan jag aldrig ta ledigt ifr\u00e5n, hur ofta jag \u00e4n \u00f6nskar att jag kunde.<\/p>\n

Jag vill g\u00e4rna bjuda in dig till en helt vanlig dag i mitt liv, Du ska f\u00e5 l\u00e5na min elrullstol och en assistent, och s\u00e5 kan du f\u00f6rs\u00f6ka ta dig fram i samh\u00e4llet, g\u00e5 till jobbet, luncha, ta ut pengar \u2013 listan med sv\u00e5righeter att g\u00f6ra enkla, vardagliga saker som de flesta av oss tar f\u00f6r givna, kan g\u00f6ras l\u00e5ng. N\u00e4r du f\u00f6r en dag bes\u00f6ker min vardag \u00c5sa, kommer du att m\u00f6ta blickar av alla slag. F\u00f6rstulna, f\u00f6rv\u00e5nade, f\u00f6rdomsfulla. Eftersom alla stirrar p\u00e5 dig f\u00f6r att du \u00e4r annorlunda. Vem vill vara annorlunda?<\/p>\n

Jag skriver inte detta f\u00f6r att framst\u00e5 som ett offer f\u00f6r min livssituation, jag vill bara att du ska f\u00f6rst\u00e5 min verklighet. Jag kan uppriktigt s\u00e4ga att jag med ord inte kan beskriva hur stor sorgen av att ha ett funktionshinder \u00e4r f\u00f6r mig. Att aldrig, ens f\u00f6r en dag, kunna g\u00e5, cykla snabbt och k\u00e4nna vinden i mitt h\u00e5r eller att kl\u00e4ttra i lekparken tillsammans med min son.<\/p>\n

Om en m\u00e5nad lite drygt ska F\u00f6rs\u00e4kringskassan ompr\u00f6va mitt beslut, har jag fortfarande ett hj\u00e4lpbehov efter snart 40 \u00e5r eller har det m\u00f6jligen skett ett mirakel? Man kan raljera om saken, men numera handlar det inte bara om mitt liv\u00a0 \u2013 utan \u00e4ven om min sons framtid.<\/p>\n

Min son f\u00f6ddes i april 2015 och sedan dess har jag haft sex (!) olika utredningar och beslut g\u00e4llande personlig assistans. F\u00f6r att f\u00e5 ihop min vardag har jag f\u00e5tt ta hj\u00e4lp av jurister och domstol, n\u00e4r det g\u00e4ller bostadsanpassning, f\u00e4rdtj\u00e4nst och personlig assistans. Jag har haft fyra LSS-handl\u00e4ggare under \u00e5tta m\u00e5nader, vilket inneb\u00e4r att jag f\u00e5r beskriva mina behov om och om igen, och jag har inte f\u00e5tt n\u00e5gra nya hj\u00e4lpmedel som jag beh\u00f6ver som sm\u00e5barnsmamma, och det \u00e4r exakt detta som g\u00f6r det sv\u00e5rt f\u00f6r mig.<\/p>\n

F\u00f6rs\u00e4kringskassan kommer vid ompr\u00f6vningen att best\u00e4mma vilka m\u00f6jligheter jag har att ge min son den uppv\u00e4xt och uppfostran som ligger till grund f\u00f6r mina v\u00e4rderingar, beroende p\u00e5 hur m\u00e5nga assistanstimmar jag beviljas. Just nu har sonen vinterkr\u00e4ksjukan, d\u00e5 ska jag beg\u00e4ra ut\u00f6kning av mitt beslut f\u00f6r att f\u00f6ljderna, l\u00e4s byte av nersmutsade kl\u00e4der och lakan etc, ska kunna hanteras av assistenterna p\u00e5 natten. Vet du hur l\u00e4nge det tar att f\u00e5 en ut\u00f6kning beviljad om man ens f\u00e5r den? Ibland upp till ett halv\u00e5r, och d\u00e5 \u00e4r vinterkr\u00e4ksjukan f\u00f6rhoppningsvis lyckligen \u00f6verst\u00e5nden.<\/p>\n

Med personlig assistans har jag kunnat leva som andra, \u00e4ven om jag k\u00e4mpar varje dag med mina f\u00f6ruts\u00e4ttningar och mot sv\u00e5righeterna.<\/p>\n

Jag \u00e4r oroad, naturligtvis f\u00f6r mig sj\u00e4lv och mina egna livsvillkor, men \u00e4ven f\u00f6r de \u00f6vriga 19.000 personerna i v\u00e5rt land med omfattande funktionshinder. \u00c4r detta verkligen regeringens ambitionsniv\u00e5 f\u00f6r svensk handikappolitik?<\/p>\n

Regeringen talar om att en minskning av antalet assistanstimmar inte kommer att p\u00e5verka personer med funktionshinder. Men min fr\u00e5ga \u00e4r: Vem skulle det annars p\u00e5verka?<\/p>\n

\/Veronica<\/p>\n

Ig\u00e5r hade VH assistans kontor i Stockholm ett j\u00e4ttefint semmelfika! G\u00e5 in och l\u00e4s deras blogginl\u00e4gg s\u00e5 f\u00e5r ni se. <\/a>\ud83d\ude42<\/p>\n

\"IMG_2374\"<\/p>\n","protected":false},"excerpt":{"rendered":"

Idag skrev jag ett \u00f6ppet brev till \u00c5sa Regn\u00e9r i DN.\u00c5sikt: Hej barn-, \u00e4ldre- och j\u00e4mst\u00e4lldhetsminister \u00c5sa Regn\u00e9r, Jag heter Veronica Hedenmark. Precis som du \u00e4r jag en yrkesarbetande kvinna i karri\u00e4ren och sm\u00e5barnsf\u00f6r\u00e4lder. Jag har t\u00e4nkt p\u00e5 dig hela dagen i dag, eftersom jag \u00e4r oroad \u00f6ver vilka konsekvenser ditt senaste uppdrag till F\u00f6rs\u00e4kringskassan, … <\/p>\n